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Myasthenia Gravis: Over 30 Years of an Invisible Journey
June is Myasthenia Gravis (MG) Awareness Month, and this year marks over 30 years since I was diagnosed with this rare, invisible...
Zuo Ann
Jun 243 min read


When Your Body Becomes a Mystery: Living with a Rare Autoimmune Disorder (Undifferentiated Connective Tissue Disease)
Fatima Megala Nathan Imagine winning the lottery—but instead of a life-changing jackpot, it's a severe and rare autoimmune condition that...
Fatima Megala
Jun 223 min read


Motherhood, Lupus, and Me: A Journey of Grace and Grit
"Having a child while navigating health challenges is definitely an arduous undertaking, especially with post-partum hormonal changes...
Serene Mai
May 223 min read


Choosing Grace: Living Well with Scleroderma
Cheryl Bok - Feel Your Feelings Hi! I'm Cheryl - living in Singapore, near the Henderson Waves where you will find me enjoying the fresh...
Cheryl Bok
Jul 17, 20245 min read


A 10-year Adventure: Invisible Strength through Sjogren’s Syndrome
Taken on the train heading to Taitung I’m a communications professional in my early thirties and I love travelling. It is one of the few...
A
Apr 11, 20243 min read


Living with the Unseen: Finding Strength and Community after an Autoimmune Diagnosis - Dermatomyositis
Diana Hi! I am Diana, a digital creative veteran, juggling digital design and art education, while also supporting my nephew with special...
sherrysoon
Mar 8, 20244 min read


Resilience and Rediscovery: A Journey Through Miller-Fisher Syndrome
Freddy (at the back) with his family I am Freddy, a husband, father, son, brother and friend. My day revolves around making people and...
sherrysoon
Jan 29, 20243 min read


Navigating Life's Unforeseen Pathways: My Journey with Vasculitis and Peripheral Neuropathy
I wish that everyone can have a little more empathy and compassion to make the world a little kinder to live in. Hello everyone, my name...
Evelle
Oct 28, 20236 min read


A Twice Survivor of Guillain-Barre Syndrome
William and the wonderful nurses who became family, as they took care of him My name is William Seah, and I am a twice survivor of...
sherrysoon
Jul 22, 20235 min read


Overcoming the Odds: From Banker to Behcet's Disease Survivor
“Be thankful and happy!” Esther was diagnosed with Behcet's disease in 2015. She underwent multiple operations and chemotherapy...
sherrysoon
Jul 5, 20222 min read


One Disease, Different Experiences: Systemic Lupus Erythematosus (SLE)
Four ADSG members, Ady, You Ting, Lauryn and Grace share their experiences with SLE as part of our One Disease, Different Experiences featur

Nicole Chan
Mar 7, 20224 min read


Living with Ankylosing Spondylitis - Gaya Selvam
“Live life to the fullest everyday.” Hello! I’m Gaya and I work full time in the healthcare sector and own an online business as a side...
sherrysoon
Feb 27, 20222 min read


Living with Polymyositis - Peh Xiujuan
"Everything happens for a reason." I am Xiujuan, a mother of a 9 years old boy. Currently, I’m working part time in banking operations. I...
sherrysoon
Dec 31, 20213 min read


How Azlina Alias' Artistic Journey Helped Her Cope with Rheumatoid Arthritis
Azlina Alias suffered from undiagnosed rheumatoid arthritis that caused chronic pain and swelling for decades, which eventually made her bed
sherrysoon
Nov 16, 20212 min read


Living with Autoimmune Encephalitis - Franz See
“I think anyone with an autoimmune disease will know that it can be emotionally and physically draining. But I also think that finding...
sherrysoon
Oct 17, 20214 min read


Living with Lupus - Angeline Q
“Living with Lupus makes me take life more seriously and I take better care of myself now because I don’t want to trouble my loved ones.”...
sherrysoon
Sep 5, 20214 min read


My experience of the COVID-19 vaccine as a patient living with vasculitis
Sherry, who has vasculitis, initially had doubts about getting the COVID-19 vaccine due to concerns about potential side effects with their
sherrysoon
Jun 24, 20213 min read
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