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Myasthenia Gravis: Over 30 Years of an Invisible Journey
June is Myasthenia Gravis (MG) Awareness Month, and this year marks over 30 years since I was diagnosed with this rare, invisible...
Zuo Ann
6 days ago3 min read
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When Your Body Becomes a Mystery: Living with a Rare Autoimmune Disorder (Undifferentiated Connective Tissue Disease)
Fatima Megala Nathan Imagine winning the lottery—but instead of a life-changing jackpot, it's a severe and rare autoimmune condition that...
Fatima Megala
Jun 223 min read
1 comment


Motherhood, Lupus, and Me: A Journey of Grace and Grit
"Having a child while navigating health challenges is definitely an arduous undertaking, especially with post-partum hormonal changes...
Serene Mai
May 223 min read
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Choosing Grace: Living Well with Scleroderma
Cheryl Bok - Feel Your Feelings Hi! I'm Cheryl - living in Singapore, near the Henderson Waves where you will find me enjoying the fresh...
Cheryl Bok
Jul 17, 20245 min read
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A 10-year Adventure: Invisible Strength through Sjogren’s Syndrome
Taken on the train heading to Taitung I’m a communications professional in my early thirties and I love travelling. It is one of the few...
A
Apr 11, 20243 min read
2 comments


Living with the Unseen: Finding Strength and Community after an Autoimmune Diagnosis - Dermatomyositis
Diana Hi! I am Diana, a digital creative veteran, juggling digital design and art education, while also supporting my nephew with special...
sherrysoon
Mar 8, 20244 min read
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Resilience and Rediscovery: A Journey Through Miller-Fisher Syndrome
Freddy (at the back) with his family I am Freddy, a husband, father, son, brother and friend. My day revolves around making people and...
sherrysoon
Jan 29, 20243 min read
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Navigating Life's Unforeseen Pathways: My Journey with Vasculitis and Peripheral Neuropathy
I wish that everyone can have a little more empathy and compassion to make the world a little kinder to live in. Hello everyone, my name...
Evelle
Oct 28, 20236 min read
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Tuning the Mind: Hazwady's Fight Against Anti-NMDA Encephalitis
Meet Hazwady, 39, a seasoned guitar teacher and a gifted songwriter at Christofori Music School. From the outside, his vibrant performances
You Ting Ng
Sep 6, 20233 min read
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Living With Anti-NMDA Encephalitis
Anti-NMDA encephalitis is a complex autoimmune disorder that can bring waves of neurological problems, causing significant challenges for bo
You Ting Ng
Aug 23, 20232 min read
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A Twice Survivor of Guillain-Barre Syndrome
William and the wonderful nurses who became family, as they took care of him My name is William Seah, and I am a twice survivor of...
sherrysoon
Jul 22, 20235 min read
3 comments


From Storytelling to Storybaking: How I Adapted to Life with Ankylosing Spondylitis
Jumaini Ariff, a professional storyteller, was diagnosed with Ankylosing Spondylitis (AS) in 2021. She experienced chronic back pain and swe

Nicole Chan
Jul 2, 20233 min read
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Ankylosing Spondylitis and Decision Making: Navigating Life's Challenges with a Chronic Illness
Olivia Yeo, 25, diagnosed with Ankylosing Spondylitis, shares her experiences with the autoimmune condition. It has affected decisions in he

Nicole Chan
Mar 9, 20233 min read
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Learning to Love and Manage Yourself While Living with Lupus Nephritis
Ady, a 42-year-old woman, shares her experience of living with Lupus Nephritis, an autoimmune disease she was diagnosed with at the age 12

Nicole Chan
Mar 1, 20233 min read
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From Career Changes to Home Design: Navigating Rheumatoid Arthritis
Louis, 31, was diagnosed with rheumatoid arthritis in 2017. She shares how the condition has affected her day-to-day life, including difficu

Nicole Chan
Mar 1, 20233 min read
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Navigating Relationships with a Chronic Illness: My Experience with Behcet's Disease
Amelia Chen, 39, was diagnosed with Behcet's Disease in 2020. She shares how the condition has impacted her daily life, particularly in rela

Nicole Chan
Mar 1, 20232 min read
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Living with Multiple Sclerosis & Rheumatoid Arthritis - Maggie Mok
Hi everyone, my name is Maggie Mok and I’m 49 years old. I work part-time and I fly kites as a hobby. About 3.5 years ago, I lost my...
sherrysoon
Jan 2, 20233 min read
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Overcoming the Odds: From Banker to Behcet's Disease Survivor
“Be thankful and happy!” Esther was diagnosed with Behcet's disease in 2015. She underwent multiple operations and chemotherapy...
sherrysoon
Jul 5, 20222 min read
1 comment


Overcoming the Challenges of Pemphigus Vulgaris: Farhan’s Inspiring Story
Despite the challenges and hardships of battling Pemphigus Vulgaris, Farhan's journey serves as an inspiration for those fighting autoimmune
sherrysoon
Apr 16, 20223 min read
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One Disease, Different Experiences: Rheumatoid Arthritis
Three ADSG members, Abigail, Louis and Natalie*, share their experiences with rheumatoid arthritis as part of our One Disease, Different Exp

Nicole Chan
Mar 29, 20227 min read
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